If you don't know about Owen here is a re-post that I wrote a few years ago on Oct 15, 2008.
While catching up on blogs I realized that today was the National Day of Loss Remembrance. And while I have posted about our situation before (here) I have never blogged specifically about Owen.
We found out at our 20 week ultrasound (Jan 2002) that we were having twin boys and that one of them was not going to go home with us. That was Owen. He had anencephaly, which is a structural defect where the neural tube doesn't close all the way. There are varying degrees of anencephaly (just the skull is missing, or most of the brain). In Owen's case he had no skull, brain or brain stem. We knew he would die shortly after birth, but we just didn't know how long. Owen was my firstborn. When he was born I saw him staring at me, almost as if he could see me. I saw him blink his big eyes once and then he didn't do anything else. I just held onto him as his heartbeat slowly faded away. We snuggled him tightly and said goodbye. We cried and cried and cried. We still cry when we talk about him.
He is a part of our lives and we have always talked quite openly with the kids about him. Two years ago, when Riley was 4, he was mentioning Owen quite a lot. He was crying about him, wishing he was here and it was happening almost nightly. I decided that we would have a little memorial/chat about Owen for Riley to say goodbye to Owen. After all, they had shared a tight space for 33 weeks. I retrieved my "Owen" stuff from the top of my closet. I opened up my special remembrance box that has some of Owen's hair (he had some above his forehead) his handprints and footprints. I shared the story of Owen with Riley and Katie. We talked about Owen being up in heaven. I showed them the blue square urn that held Owen's ashes. The urn has a little bear engraved on it.
Riley asked me if he could hug Owen and proceeded to cuddle the little urn and then said the sweetest things to Owen: "I'm sorry that God didn't make your head right and I'm sorry that you have to be in the closet all the time. Sorry you can't come in the car with us."
We all had a good cry that afternoon. I packed away all my Owen stuff and haven't taken it down since. I wrote down all the things that Riley and Katie did and said about Owen. One day I'm sure they would like to know. Today I remember Owen and wish he was here. But I'm so glad Owen has his perfect Heavenly Father. Today I think about all the women who have lost their sweet babies whether through miscarriage,abortion, birth, SIDs or through some other way. Saying goodbye to any child is the hardest thing a mom can go through.


6 comments:
thank you for posting this Liz, I have read Owen's story before, and I was just as touched reading it again, the same kindred feelings and tears welled up...love you friend.
Wow, Liz. I had no idea. Thank you so much for sharing about your precious Owen. What an amazing journey you have been on. I was bawling as I read this post. You are so strong & inspiring to so many!
love you much.
God Bless your little angel. It is so much more common than I had known, but on that day I realized I knew somany people who were morning the loss of their infants. For one of my friends it has only been a year and it was her first baby. She still struggles very much daily. Your story was very heartwarming, loving and touching. I am a Special Education teacher and once taught a student with anencephaly. Thank you for sharing your story.
liz, sending you a hug. thanks for sharing about darling baby owen.
so glad that you had the gift of meeting sweet owen. i know he is with jesus and i bet he's playing and singing with my babies in heaven, too!
love you, praying for you.
thank you for sharing owen with us. thank you for your vulnerable heart and allowing us in to your beautiful story. owen is in heaven, with samuel and so many other sweet, sweet sweet babies. he is with jesus. you will hold your sweet own one day. you're arms will be so full with love when you come to heaven.
i'm sorry that i didn't comment sooner for this post...
i think what struck me the most is how your family...especially your kids talk about owen. i cried so hard when i read that. just really beautiful liz
have a beautiful day, friend
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